Depression and Disability

A P r a c t i c a l G u i d e

by Karla Thompson, Ph.D.

The North Carolina Office on Disability and Health

Depression is an illness that effects more

than 17 million Americans each year. Many of

those people are individuals with disabilities.

Not everyone with a disability becomes

depressed, and those who do become depressed

may not be depressed because of their disability.

However, people with disabilities face unique

challenges and stresses which place them at

increased risk for depression.

Depression is a common and serious

health problem. About 12% of all men and

20% of all women are expected to have at least

one significant episode of depression in their

lifetime, and 5% of the general population may

be depressed at any given point in time.

Studies have shown that symptoms of

depression may be 2 to 10 times more

common in individuals with disabilities or

chronic illnesses, and depression is one of

the most common "secondary conditions"

associated with disability and chronic illness.

But the good news is that there are effective

treatments for depression available.

Contents

What is Depression? 4

Why Do People

Become Depressed? 10

Why are People with Disabilities

at Risk for Depression? 14

How is Depression Treated? 20

What Should You Do if

You Think You Are Depressed? 22

For More Information

about Depression 30

What is

depression? Depression is not just feeling

sad, "blue," or discouraged, and

it is much more than the normal

"downs" that can be a part of

everyday living. It is an illness

that affects the whole person –

their thoughts, feelings, behavior,

and physical health. In its mildest

form, depression can keep

otherwise healthy individuals

from enjoying their lives to

vthe fullest.

When depressive symptoms are

more serious, they cause needless

suffering for the person who is

depressed and needless pain for

the people who love them. In its

most severe form, depression can

be a life-threatening condition.

Symptoms

Some of the symptoms of depression can include...

Feelings of sadness,

anxiety, hopelessness, or emptiness

Loss of interest

in activities that used to be enjoyable

Sleep problems,

like sleeping too much, having trouble

falling or staying asleep, or waking

very early in the morning

Changes in appetite

with weight loss or weight gain

Feelings of increased irritability,

restlessness, or frustration

Decreased energy

or becoming tired after normal activities

Difficulties with concentration,

memory, decision making, or mental slowing

Feelings of excessive guilt,

worthlessness, or helplessness

Decreased interest in interacting with others

Crying more often than usual

Recurring thoughts of death or dying

Thoughts of suicide or suicide attempts

When someone is depressed, they have symptoms

nearly all day, everyday, that last at least two weeks.

Not everyone who is depressed will have all of

these symptoms. The individual symptoms of de

pression

are very common. Occasional

changes in sleep or appetite, or feelings of

sadness, guilt, irritability, or fatigue are part

of the normal human experience. It is when

many of these symptoms occur together, cause

difficulties in day-to-day functioning, and last

longer than a few weeks that they may be signs

of a depressive illness.

All kinds of depression are treatable

There is more than one kind of depression.

The most severe kind of depression, called

Major Depression, involves a specific

combination of the symptoms described

on page two. Sometimes Major Depression

is part of another mood disorder called

Bipolar Disorder, in which periods of depression

alternate with periods of elevated mood,

increased energy, agitation, and other symptoms.

People who are experiencing an episode

of Major Depression often feel hopeless and

overwhelmed. They may have trouble getting

out of bed in the morning or taking care of

themselves in other ways. For people with

some kinds of disabilities, neglecting even the

most routine aspects of self-care can lead to

other, potentially life-threatening medical

conditions, and depression is believed to be a

contributing factor in many preventable deaths

among individuals with disabilities. Suicide rates

are also higher among some groups of people

with disabilities.

Less severe kinds of depression include

adjustment reactions and Dysthymia, a chronic,

low-grade depression lasting two years or more.

While Dysthymia is less likely to lead to suicide,

it can be associated with persistent feelings of dis

satisfaction,

discouragement, and disappointment

that contribute to a poor quality of life.

Why do

people

become

depressed?

Depression isn’t "all in your head."

It is not a sign of personal weakness,

and it is not caused by laziness or

a lack of willpower. It is a real ill

ness

with real causes. Some of these

causes include biology, heredity,

personality, and/or life experiences.

Depressive disorders involve chemical changes

in the brain. People with depression typically have

too much or too little of certain brain chemicals,

called "neurotransmitters." Whether these chemical

changes are always the primary cause of depression

or occur after someone becomes depressed is a

question that has yet to be answered. However,

treatments that restore these chemicals to their

normal levels help to cure symptoms of depression.

Some symptoms of depression can be caused

by chronic medical conditions or the medicines

used to treat them. For this reason, a complete

physical examination and medical work-up should

always be conducted before someone

begins treatment for depression. Alcohol or drug

abuse can also cause depressive symptoms.

Depression tends to run in families, and

if anyone in your immediate family has prob

lems

with depression, you are at increased risk.

Women are twice as likely as men to experience

depression. The reasons for this may include

hormonal changes associated with the female

reproductive cycle or the stresses associated

with being a woman in today’s society.

Some personality characteristics and coping

styles are also associated with depression.

For example, having low self-esteem or feeling

that you have no control over events in your life

are common traits in people with depression.

However, not everyone agrees whether these

personality characteristics cause depression

or are simply symptoms of depression.

Any of these factors, alone or in combination,

may place an individual at increased risk for

depression. Certain life events may also trigger

one or more episodes of depression.

Some theories about the causes of depression

suggest that people who become depressed

have had too many negative life experiences

(like serious illness or the loss of a job) or

too few positive, pleasurable experiences

(like rewarding relationships with others).

While some symptoms of depression are a

natural response to stress or loss, the suffering

and feelings of hopelessness associated with a

clinical depression are typically more intense,

last longer, and have a much greater impact on

an individual’s day-to-day functioning than the

feelings associated with any one particular loss

or life crisis.

Why are

people

with

disabilities

at risk for

depression?

Having a disability doesn’t

automatically mean that you

are going to become depressed.

Not all people with disabilities

suffer from depression, and for

those who do, their depression

may have little to do with their

disability. However, depression

is associated with certain life

experiences that are more

common among individuals

with disabilities. In addition,

people with disabilities face

many unique problems and

challenges which may place

them at increased risk

for depression.

vtv

Some of the challenges that people with

disabilities can face

Mobility Many persons with disabilities have

trouble walking or getting round, both in their

own home and in the community. This can effect

how they take care of everyday activities, like

dressing or bathing, as well as how often they

get out of the house. Sometimes having mobility

problems means needing help from others to

do things that most people can do on their own,

which can be frustrating or embarrassing.

Being unable to drive may further limit one’s

ability to participate in important life activities

like work and play, as well as taking care of

everyday tasks like grocery shopping or visiting

with friends. Not having the strength, endurance,

or other abilities necessary to do what you want

to do, when and how you want to do it, may

cause you to feel frustrated, angry or helpless.

Accessibility Because most homes and many

buildings and businesses still do not meet the

Americans with Disabilities Act guidelines for

accessibility, individuals who move slowly or

use wheelchairs, scooters, walkers, or canes

may find it more difficult to shop, dine, work,

or access health care and other professional

services.

Social Barriers and Social Isolation

Not all of the obstacles and barriers individuals

with disabilities face are physical. Many people

without disabilities don’t understand what it’s

like to have a disability or don’t know how to

act around someone with a disability. In addition,

some people feel uncomfortable or harbor prej

udices

and negative attitudes toward individuals

with disabilities. These are social barriers that

can make it more difficult for people with

disabilities to form friendships and other

relationships. Not having good social support

increases anyone’s risk for depression.

Employment In general, people with

disabilities may have more difficulty finding

and keeping jobs. Sometimes this is because

of the individual’s physical or other limitations,

and sometimes it is because of social prejudices

and misconceptions. Whatever the reasons,

difficulty finding and keeping work can lead

to financial problems, which are an additional

source of stress. Work is also an important

source of self-esteem for many people.

Not being able to work when you want to work

may lead to feelings of worthlessness or guilt.

Health Many people with disabilities enjoy

good health, but some kinds of disabilities are

associated with more health problems, and

sometimes persons with disabilities have trouble

getting the health care they need. Even people

who don’t have disabilities are more likely to

become depressed if they have many medical

problems, and people with more symptoms

of illness tend to suffer from more severe

depression. Finding ways to pay for health

care can also be especially difficult for people

with disabling conditions.

Not all Disabilities are Obvious

Some individuals with disabilities look and move

just like non-disabled people but have trouble

hearing, speaking, seeing, reading, thinking,

paying attention, or remembering. Other people

with chronic illnesses may look well but have

problems with pain, fatigue, or other disabling

physical symptoms. These kinds of problems can

make it difficult to work, go to school, take care

of yourself, and communicate with others.

They may be especially hard to deal with

because people may not recognize that you

have a disability or understand what you are

going through.

Any of these challenges are difficult to deal

with. When someone has to deal with several

of these at the same time, the risk for developing

a depressive illness is greater. However,

regardless of the cause or contributing

factors, depression can be treated.

How is

depression

treated?

There are many effective

treatments for depression

available. With appropriate

treatment, the majority of

people with depression can

feel better, often within a

matter of weeks.

Counseling or "talk" therapy,

medications, or a combination

of the two are the most common

and effective treatments. Counseling or psychotherapy helps people

learn to cope with depression and to deal with

personal and external factors that may be

contributing to their depression. Some therapies

focus on helping people identify and change

attitudes or ways of thinking that contribute to

their depression, while other therapies are

designed to help people change their behavior.

Antidepressant medications are

an important part of treatment for depression.

These medications aren’t "happy pills" or

tranquilizers. They do not elevate mood by

changing your personality or making you lose

touch with reality, and they are not habit

forming. They work because they help restore

the chemical balance in the brain that is altered

when someone becomes depressed.

Although the combination of talk therapy

and antidepressant medication is an effective

treatment for the majority of people with

depression, sometimes more severe and

persistent depressions require more aggressive

treatments. These may include hospitalization

and/or electroconvulsive therapy.

What

should

you do

if you

think

you are

depressed?

Depression is very treatable,

but too often, people with depres

sion

don’t get help. This may be

because they don’t recognize that

they are depressed, have trouble

asking for help, or are embarrassed

or blame themselves for how

they feel.

Other people mistakenly think

that they will just "snap out of it,"

and some don’t know that help

is available.

If you think that you or someone

you care about may be depressed,

get help. Have yourself evaluated

for depression so that you can get

treatment if you need it.

People and places you can

contact for help include your

family doctor and your local

hospital, public health clinic,

or mental health center.

If your depression is so severe that you

are thinking about suicide, don’t wait

around hoping to feel better.

GO TO YOUR LOCAL EMERGENCY ROOM.

Sometimes people get so depressed that they

can’t make themselves get the help they need.

If you think someone you care about is severely

depressed, don’t leave it up to them to get help.

Help them make an appointment to talk with

their doctor or a mental health professional,

and make sure they keep that appointment.

What Else Can You Do to Feel Better?

If you have a serious depression you should

seek help from a competent mental health

professional. However, there are also a number

of things you can do to help yourself feel less

alone, discouraged, or blue. If you don’t think

you are depressed but do feel down at times,

these are things you can do to feel better and

reduce your risk for developing a serious

depression.

Talk to friends or family about what you

are feeling. Feeling sad or disappointed in life is

nothing to be ashamed of, and sometimes just

letting people know that you are feeling down

can help you begin to feel better. The people

who care about you can’t help you if they don’t

know what you’re going through. If you can’t get

out of the house to see friends and family, write

a letter or talk with them on the telephone.

Get in touch with other people with

disabilities. As much as they may try, nondisabled

people can’t always understand what

it’s like to live with a disability. If you are feeling

alone or misunderstood, talking with someone

who has a similar disability can make all the

difference in the world. Your health care

provider may be able to give you the names

of other individuals who have had similar

experiences. Support groups for individuals with

specific disabilities can also be an important

source of information on how to cope with

disabling conditions. In North Carolina, you can

call the Family Support Network of North

Carolina for information about local support

groups for brain injury, stroke, spinal cord

injury, spina bifida, multiple sclerosis, and other

disabling conditions. Public libraries in some

areas have computers which can be used to

search the Internet for groups and agencies

that provide education and support for

individuals with disabilities.

Become an Advocate If you think that

environmental and social barriers are causing

you to feel discouraged, down, angry, or bad

about yourself, find out what you can do to make

a difference. Call the Family Support Network

of North Carolina to ask about local advocacy

groups. Talk to store managers who make the

aisles in their stores too narrow for wheelchairs.

Tell your doctor or the local hospital that they

need more handicapped parking spaces.

Write your congressman about the problems

with health care and health insurance that

individuals with chronic disabling conditions

can face. And respond directly - but with dignity-

when people who don’t know better behave

poorly or use language that offends you when

talking with you about your disability.

Exercise Physical activity can be one of

the most effective ways to combat depression.

Even if you have significant physical limitations,

increasing your level of physical activity even

just a little bit will help improve your mood.

Stress Management Although stress doesn’t

always cause depression, stress tends to make

depression symptoms worse. Finding stress

management techniques that work for you -

relaxing, meditating, praying, watching funny

movies, doing crafts, keeping a journal, or any

other activities that make you feel less stressed -

can make you less vulnerable to depression.

Volunteer Volunteering can be a meaningful

and rewarding way to spend your time. It can get

you out of the house and provide opportunities

for interacting with others. If you can’t get out

of the house, you can still make telephone calls,

write letters, or do other kinds of volunteer

activities from your home. Spending time and

energy helping others can help take your mind

off your own troubles and make you feel appre

ciated

by others.

For more information...

North Carolina Resources

Family Support Network of North Carolina

UNC Chapel Hill School of Medicine

CB# 7340

Chapel Hill, NC 27599-7340

(800) 852-0042

http://fsnnc.med.unc.edu

NAMI NC

309 W. Millbrook Rd. Suite 121

Raleigh, NC 27609

(800) 451-9682

www.naminc.org

email: mail@naminc.org

Mental Health Association of North Carolina

3820 Bland Road

Raleigh, NC 27609

(888) 881-0740

www.mha-nc.org

For more information about depression.

Please contact any of the organizations listed

on the following pages…

National Resources

National Mental Health Association

(NMHA) Center

1021 Prince Street

Alexandria, VA 23314-2971

(800) 969-6642

www.nmha.org

National Foundation for

Depressive Illness, Inc. (NFDI)

P.O. Box 2257

New York, NY 10116-2257

(800) 239-1265

www.depression.org

National Depressive and

Manic Depressive Association (NDMDA)

730 North Franklin Street, Suite 501

Chicago, IL 60610

(800) 826-3632

www.ndmda.org

National Institute of Mental Health

Depression Awareness, Recognition,

and Treatment (DART) Program

2235 Cedar Lane

Vienna, VA 22182

(800) 421-4211

The North Carolina Office on Disability and Health

is a partnership effort with the NC Division of

Public Health and the UNC-CH FPG Child Devel

opment Institute to promote the health and wellness

of persons with disabilities in North Carolina.

For additional copies and information

on alternative formats, contact:

NC Office on Disability and Health

UNC-CH, Campus Box 8185

Chapel Hill, N.C. 27599-8185

FAX: (919) 966-0862

www.fpg.unc.edu/~ncodh

Publication date 2002.

Permission is granted to repring Depression and Disability; please

acknowledge the NC Office on Disability and Health (NCODH) and

Karla Thompson, the author of this publication.

This publication was made possible by a grant from the Centers for

Disease Control & Prevention, National Center on Birth Defects and

Developmental Disabilities (U59/CCU419404-01).

3000 copies were printed at a cost of $1246.59, or 41¢ per copy.

About the Author

Karla Thompson, Ph.D., is a Clinical

Psychologist and Clinical Neuropsychologist

with the Department of Physical Medicine

and Rehabilitation and Psychiatry at the

UNC-Chapel Hill School of Medicine.

Dr. Thompson works with individuals with

a wide variety of disabling conditions. She

provides assessment as well as individual and

group treatment services to individuals with

chronic and/or disabling conditions, using

cognitive-behavioral and interpersonal

approaches to support the efforts of persons

living with disabilities to maximize their

independence and quality of life.

Depression

and Disability

A P r a c t i c a l G u i d e